Interstitial Cystitis is ignored by the medical community to a very large degree. Even mainstream medical publucations minimize it. It is so frustrating to see it, being so broadly misrepresented. It HURTS. Pain, severe pain is NEVER-ENDING.
Yet even Mayo, Merck and CDC minimize the reality of the suffering we go through. I suppose having an unexplainable disease with no clear pathogenesis is easy to dismiss.
I bombard news outlets, the President, celebrities with this blog, in hopes that someone somewhere takes the time to listen. Takes the time to care. Takes the time to say, hey this disease is causing severe suffering.
It is causing poverty, it is causing suicides.
It is not something a sufferer can ignore.
Do we not deserve compassion?
No comments:
Post a Comment