Dying for relief: We NEED Opiates.

I know there are many more people who have chosen death because they are treated so piss poor by doctors. Perhaps not just IC/PBS, but many pain patients who just can not take this pain anymore. The humiliation of having doctors blatantly tell you they wont help you. The financial crisis this pain causes.
The quality of life issues.
The reality is that to our Doctors, CDC, WHO, DEA, FDA, and Federal government; we do not matter. We are a burden. A blight. Something better off dead than on meds. We are denied basic Constitutional rights and even more basic medical care. We need to push back and push hard. We DO matter. Let the world hear our about our pain. If you read this I ask you share the link anywhere you can. Tag Potus, flotus DEA CDC FDA and doctor organizations. The more we speak up the harder we will be to ignore.
Imagine if we all PUBLICLY demanded pain treatment? HOW long can they ignore us if we become a voice they can not hear over? Please join the fight for basic human rights and dignity in treatment.

Doug Hale Oct 2016
https://www.painnewsnetwork.org/stories/2016/12/22/chronic-pain-patient-abandoned-by-doctor-dies
Allison Kimbery June 2017
http://m.legacy.com/obituaries/denverpost/obituary.aspx?n=&pid=185902615&referrer=0&preview=True
Diane McLean March 7th 2002
http://barryyeoman.com/2003/06/not-just-a-bladder-infection/


http://tau.amegroups.com/article/view/8043/8838

Olivia Crowther June 24th 2008

https://www.google.com/amp/s/jeancalder.wordpress.com/2008/07/26/cystitis-can-destroy-lives/amp/


http://www.o-wm.com/content/interstitial-cystitis-recognizing-and-caring-wounded-bladder

http://causes-of-death.healthgrove.com/l/8166/Interstitial-cystitis-chronic

https://www.inspire.com/groups/interstitial-cystitis-association/discussion/suicide-and-ic/
cutting_down_on_opioids_has_made_life_miserable_for_chronic_pain_patients.html

Everything hurts

  In a flare so bad I wish I could cut my own bladder out. If I thought an ER would help Id go. If I lived in Amsterdam Id tell them I was an addict just to get pain relief. That should not be the way of medical care. There is ZERO reason we should be forced to endure this. Zero. I keep sharing this blog, in hopes someone somewhere has both the compassion and authority to treat this disease. To treat us like human beings who deserve care and compassion.

If I don't laugh I will cry.

*Have you tried cranberry juice?

* Eat alkaline.

* Pray for healing if you are not healed you must not be faithful enough. 

*Eat blueberries.

* Go to a doctor, surely they can prescribe you medicine.

* Why dont you just get pain meds? 

* Have you tried aloe?

*Just pretend you do not hurt.

* There is no way you pee that often.

*I'd just kill myself if I had that. 

* Aren't you over that now?

* Can't you get disability?

*Just wear a diaper.

* It can't be that bad. 

* Have you tried( insert any essential oil brand).

* Can't you just take an antibiotic?

* Get vicoden from your doctor.( They do not prescribe that much anymore people.)

*Are you sure it hurts that bad?

* There is no way your pain is always a 10."Nurse said that."

* Disability is for people who need it. ( Disability worker who also laughed at me while I was crying in pain."

* Your bladder is a normal size. ( a urologist) 

* Follow the IC diet( there is no specific diet) limit your fluids( doing that makws pee more acidic thereby worsening pain) suck on sugarfree candies for dry mouth.( UroGYN IC specialist, Artificial sweetners make it worse, she should at least KNOW that.