Everything hurts

  In a flare so bad I wish I could cut my own bladder out. If I thought an ER would help Id go. If I lived in Amsterdam Id tell them I was an addict just to get pain relief. That should not be the way of medical care. There is ZERO reason we should be forced to endure this. Zero. I keep sharing this blog, in hopes someone somewhere has both the compassion and authority to treat this disease. To treat us like human beings who deserve care and compassion.