Journey record of my battle for proper treatment and care for my I. C or Interstitial Cystitis Painful Bladder syndrome. This disease affects millions, yet the treatments are archaic. Many practitioners dismiss the disease. Unfortunately we suffer from their arrogance and dismissal.
Friday, October 30, 2015
Urodynamics and IC pain
If you are an IC sufferer and you have a Urodynamics test be prepared for a lot of pain. The test itself was not so bad except I couldn't relax enough to pee even though I really needed to do so. After the test is the pain. My bladder felt like someone poured boiling liquid in it and then punched it repeatedly. I couldn't get any relief last night. Plus two days of 4+ hours in the car for this test also made me hurt worse. I dont really see much point in this test. They know I have Hunners ulcers already. It just one more procedure verses a prophylactic medication route. I know there is no cure and treatments are flimsy. There is no reason at all that I should be denied palliative care to include pain meds. No reason anyone should have to suffer this excruciating pain. Sorry medical professionals Motrin just doesn't cut it.
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