Negativity

I am in a forum that is about treating IC with natural remedies and diet. It says healing but those who are "healed" generally adhere to a bland diet. If they consume anything off their normal regime they are back to square one. Ive adhered strictly to the same diet, with little relief. Someone new got upset that so many people say what does not work.

I feel like people NEED to know that some people just will not get relief by ANY METHOD. I feel that it is not negative but it is reality. Those who do get better seem to have extremely mild cases and I sometimes question if it was truly IC for many. Thhose who have distinct causation such as lyme and treat, do recover. However that leaves the rest of us with IC that does not go away.

If we do not speak up and let others know that, diet, pelvic floor therapy, supplements et cetera arent working, then we are left wondering what we are doing wrong. The answer is nothing. We just do not have a fixable cause. Sure we should try to provide relief to our bladders as much as possible but that doesn't mean our problem goes away.

The IC diet is not one size fits all. What hurts one may be fine for another.  The diet is simply a BANDAID.

Some new studies show that classic Ic with Hunners have a different genetic marker and bladder biome. So maybe in the future people may not suffer for decades.

It is okay to say No I am not okay. It is okay to say nothings really helping. Its okay to say your bladder sucks.